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I’ve been told for years that my symptoms are “random.”
But random doesn’t feel like this.
My body reacts to things it never used to.
My skin burns, itches, breaks out.
I’m developing allergies to things that are supposed to help me.
And I kept trying to make it make sense… piece by piece…
because when you’re chronically ill, you learn not to overwhelm doctors.
So you bring one issue at a time.
You wait your turn.
You trust the process.
But what happens when no one asks what else is going on?
Because there is more.
And the other day… something clicked.
Everything I’ve been calling “random” might not be random at all.
I’m not saying I have answers yet.
I’m saying I’m starting to see a pattern.
And I’m tired of being the only one connecting the dots.
I need your help with feedback with my new app
Some kids run away.
Some kids escape.
There’s a difference.
I trusted her.
Because that’s what we’re taught to do.
When something feels wrong, you assume the professional knows better.
You assume rest will fix it.
You assume you’re overreacting.
I wasn’t.
If your body is telling you something is wrong, push for answers.
Neuromyelitis optica not rare.
It's often missed.
Suddēn Vision loSsislar EARLIER
emergency.
If something feels wrong, push
for answers.
This is what medical dismissal
can cost.
.
2
feeding tube daily routine tube feeding adult chronic illness nutrition
Neuromyelitis optica almost blinded me and doctors missed it.
Some realization don't need applause. They just need language
The problem was never your efforts, It was the expectation
that effort should looks the same everyday.
01/05/2023
Welcome to my Amazon Favorite's, where we focus on the amazing products that help us connect our mind body and our heart.
Today's message of the day is
"Pamper yourself into alignment with who you really are and then face your day!"
Sending good vibes your way! Have an amazing day!
https://amzn.to/3jSOf15
08/01/2022
When the clock strikes midnight tonight it will be gastroparesis Awareness month and I have something really important I need to share with all of you because it's a rare disease that's affecting a lot of people. My Facebook friends who know me very well know that I love food, but since my diagnosis I struggle with eating a simple meal. My stomach doesn't work in the conventional way, infact it's more similar to a sloth. Sloth is our spirit awareness animal for gastroparesis because they have exceptionally slow digestive systems. It would literally take them a month to simply digest a leaf because of the lack of parstalisis. (which means the contraction of the stomach and bowel intestines and a lack of gasteric emtying that isnt passing to the small intestine). Humans like me do experience the same symtoms as a sloth.
My symptoms started as a child and then progressed really quickly and went into chronic gastroparesis in early adulthood. If I was to eat something like tomatoes or vegetables fruits of any sort. I wouldn't be able to digest it due to the seeds and the skin of the fruit / vegetabl. As much everyone preaches about having a good amount of fiber in your diet. They will also not prepare you for what your stomach does when you eat/try and digest. It will send me into a flare and I won't be able to eat as much as I was before.
I've had to give up everything good in my diet and its really hard to find joy in food again.
I spend most of my days dealing with excruciating issues cramping, stomach pains, lack of energy, malnutrition, chronic fatigue, running on days of being empty.
Feeling full but haven't eaten in 3 days or more. Some day all I consume is chicken broth, jello, rice pudding, also need to keep up on my electrolytes make sure my levels are up. I also can't drink water because that creates more nausea or makes me feel worse and makes me diluted down my electrolytes.
Which is the opposite effect of what we're trying to do.
Life can be so unmanageable at times but the reason for my post is not to pity me but to bring awareness and education to an overlooked medical condition in the medical community and in our society. It's imperative for people to stop the condition from going in to a chronic one. There is surgery for it but there is no guarantee it will fix the nerves that create parastalis in the digestive system. There is medications bit they only mask the symtoms and have lots of side effects. Unfortunately there is no cure for gastroparesis as of right now so we're just trying to create an awareness and let others know that we are struggling and this is real.
07/14/2022
I absolutely love this! 💕
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