Jenny’s journey with brainstem Glioma

Photos from today

My lovely friend Nicky did my nails for my birthday tomorrow. Thank you so much I love them.

Good evening
, just dropping by to say hi. Nwly reached birthday on Friday which seems a bit nostalgic. Hoping to have a take out but nothing else much planned. What are you guys into this weekend?

Back after an emergency admission
Where I went unconscious
At where I wereafter a scan me I things had progressed and have given high steroid doses and stuff in case it was seizure.unfortunately lost quite a bit more sight so sorry fir ant type d🥲. Sor typos i cant read back wha i have typed to correct it. So probably a few weird messages to omefrom me but you’ll forgive me im
Sure # #

Hi been for a hand massage and councelling today at the hospice which I did find helped., they validated things like you all have so kindly and hopefully we have a bit of a plan which might involve some baking with the boy!

Emotional day today and
Lots of tears, it’s alm like a
Bereavement for wha nt got for and trying to focus on what I do still have. Searching for my oji..where
Or where are you. Kevin has said to do something
Just for me tomorrow just not sure what yet.. -any ideas?

Hi everyone, haven’t been On here for Few days as I have been feelng quite sorry for myself, my husband reached out to The hospice and a lovely doctor came Out to have a chat re my sight loss which they think is due to some swelling and they’ve increased someMedication which hadcertainly made me feel a bit better today no change of imn my sight yet so struggle on technology s now they’veoffered me someOtherMedication I have been
N Extremely tearful, hence saying that I’ve felt sorry for
Myself. Somdays in dawns on you how cruel life is and I’ve had had trouble
Picking Myself backUp and trying to be positive .they’re so many people that struggle with being depressed and cover it over that I openly discussed things today. Sorry it’s a bit gloomy but hopefully I’ll feel a bit more upbeat soon. Tara for
Now.

Instead of my
Moaning today I’m going to ask How had everybody’s day been? I am grateful for my wheelchair being repaired yesterday and having
My freedom back.

I’m struggling with this stupid illness today:,it seems to be making my vision blurry and I wish I could do more to fight it. I feel like I don’t have control and it feels very unfair.

Been offline after dropping/ drowning 2 phones I. A week. Hopefully my run of bad luck is over otherwise the repair bill will be exhausting!