Kayla’s Spina Bifida Journey
I have Spina Bifida a extremly rare birth defect where my spine didn’t close fully. Approximately only 166,000 in the USA have this.
Every case is different so they call it the snowflake disease. It causes nerve damage that can be moderate to severe.
07/23/2026
We are home and she’s soaking up the 💤 s. Surgery went perfect and next week we will be changing her casts and checking her incisions to then be put in casts for 2 more weeks. We will see what the game plan is from there. But as of now she’s doing great. I’m so blessed to be chosen to be her mom. As scary and stressful as motherhood can be it’s definitely a beautiful journey and continuously reminding me the importance of trusting God!
Kayla is getting her tenotomy today to correct her club feet
07/23/2026
UPDATE ON KAYLA ❤️👣🫶
Today we are at the hospital having the tenotomy redone but this time a bit more invasive. They had to put her under anesthesia make an incision in the back of her ankle to cut her achilles and lengthen it a bit. She’s back in the operating room right now so please keep her in your prayers 🙏
Last Wednesday we had her last cast removed as planned and put her in boots but unfortunately her feet didn’t handle them well and we decided she needed more casts to correct her feet a bit more so Friday we had them put them back on. Well Monday one started to slip so we had to soak them off and her Dr recommended surgery to avoid further complications.
God willing this will speed up the process of correcting her clubbed feet and avoiding a future relapse. I know God has been with us and will continue to give us the support and guidance we need to make the best decisions to help her in the future.
Thank you all for the love, support, & prayers!
07/10/2026
Our beautiful baby girl Kayla is almost done being in casts. We started this process June 3rd with her 1st cast, June 10th her 2nd cast, June 15th 3rd cast, June 19th her 4th cast, June 24th her tenotomy surgery where they cut her heal cords to correctly position her feet from the clubfoot position. On July 15th we will be removing her final cast and putting her in boots/braces she will have to be in those for 3 months 23 hours a day, then 3 more months 18 hours a day, then for however long the doctor wants for 12 hours a day mainly while sleeping! We are so grateful to have an amazing clubfoot specialist to care for her. She’s been super strong and resilient! We are blessed beyond measure and so thankful for all God has done through our miracle child/faith builder! 🙌 last picture is of how much her foot has shifted thus far before the surgery. I can’t wait to see them this Wednesday 💪👣❤️
06/19/2026
Kayla today got her 4th cast put on! Wednesday is her tenotomy and she’ll get her final cast put on for the next 3 weeks! She’s done truly amazing and we are so thankful for the results already! God is so great 🙌 and she is so strong 💪 There’s a before and after picture from before her 1st cast to after her 3rd cast today it’s unbelievable the results ❤️
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