But You Don’t Look Sick

https://www.instagram.com/reel/DDaVFWFPnto/?igsh=MWd5ZGV6d2FhY2h1aQ==

This may be the *best* response I’ve ever heard to the dreaded and hated “but you don’t look sick” comment. What’s your go to sassy remark? #chronicillnesshumor #autoimmunewarrior #spooniecommunity

In my feels today, warriors. Allowing myself grace and staying in my feels today. I know so many of you warriors can relate. I was completely gaslit by another doctor today. I really thought that had come to an end with remission.

“CRPS/Dysautonomia. Neither here, nor there. Do they really even exist?” “I want you to up your water intake to a gallon a day” “But I completely understand”

That’s 👆 what I was told today.

I’ve had my pants pulled up midstream (sorry, if TMI, but this group is open for all the good, bad and ugly. This is a SAFE place) while urinating and kicked out of a hospital when I couldn’t walk. My husband has been in a screaming match for how we were treated in another hospital in another state. It’s too much.

If you haven’t watched, “Taking Care of Maya” on Netflix, I urge you to watch it. This touched some on how our medical system is failing us.

What’s something you’ve experienced with medical staff? Because I know I’m not alone.

Onward, warriors. 💪💙🩵🧡

Never be ashamed 🧡💜

https://themighty.com/topic/fibromyalgia/what-it-feels-like-to-have-a-cold-and-fibromyalgia/?utm_source=engagement_bar&utm_medium=link&utm_campaign=story_page.engagement_bar/

Why Getting Sick While You Have a Chronic Condition Is a Big Deal It's not like a "healthy person's" cold.

https://www.facebook.com/728190787/posts/10165891824575788/

Fact #1. 👇👇👇Ouch!!

Bur you don’t look sick?? Drop a selfie and introduce yourself. It would be a pleasure to meet all the warriors and family/friends stopping by! 🧡😊

Two HUGE accomplishments today. 1) I walked the halls carrying the ARP machine abs turned MYSELF up to 100 2) in a hotel in Arkansas...just like THAT 🤌, I mastered the cat-eye 😽🔥