Brave Beyond The Diagnosis

Hi everyone 💙

I wanted to share that I’ll be taking a short mental health break. I promise I’ll be back soon — but right now, I need to focus on myself for a bit.

Being a Tubie parent is one of the most rewarding journeys, but it can also be incredibly overwhelming. It’s so important to recognise the signs of depression, anxiety, and emotional burnout… and to give yourself permission to pause when you need it. 💛

Thank you for your understanding, kindness, and continued support. I appreciate this community more than you know, and I can’t wait to return with a full heart and a rested mind.

Take care of yourselves too — your mental health matters. 💙🩵

— Joy 💜

🌟 Tube-Fed Kids: Truth vs Myth 🌟
Tube-fed children deserve understanding, not assumptions. This carousel breaks down common myths and shines a light on the strength, resilience and joy of our little tubies. Every child’s journey is different — but every journey deserves dignity and support.

Photos of Pippa are shared with permission and credited to 🤍

Let’s educate, encourage and uplift families walking this path.

💚 Brian’s Story: The G-Tube Chapter & Growth (Part 2) 💚
When Brian received his G-tube, everything changed. What once felt scary became a tool of freedom — giving him strength, stability, and the ability to thrive.

Stay tuned for Part 3, where Brian faces one of his biggest challenges yet.

✨ When you pass through the waters ✨
The Tubie journey can feel overwhelming, but God promises to walk with you through every challenge. 💜 The rivers will not sweep you away—His strength will carry you through. 🌟

Share this post to remind another Tubie parent that God is with them in every moment. 💜

💜👶🌟

📖 Diary Entry – 16 July 2025
Today was a mix of hope and uncertainty. Grayson came off oxygen, and seeing his little face without extra tubes felt like fresh air for my heart. Feeding is still a big struggle, and with no diagnosis yet, we’re learning to take things one day at a time. Thank you for every message, prayer, and bit of support — it carries us more than you know. 💙
Every Tubie journey matters. If you feel called to, share yours with us.

🍼✨ Choosing the Right Formula ✨🍼

Finding the right tube-feeding formula isn’t always straightforward — it’s a journey guided by your medical team and shaped by your child’s unique needs. From allergies to growth to comfort, every detail matters.

Remember, you don’t have to walk this path alone — one formula at a time, you’re doing your best to nourish your little warrior. 💙

📸 Photographs of Jackson by

Now, it’s your turn to share your journey. 🌿 Whether your story is long or short, detailed or simple — it matters. Your voice might be the encouragement another family desperately needs today.

Here’s how to share:
💌 Send your story via DM (as short or long as you’d like).
📸 Add any photos you want — dates help so much!
📝 I’ll send you the final draft before posting so you’re 100% comfortable.
💬 Need help getting started? I’ll send prompts or topics to guide you.
🧡 You can stay anonymous or use an alias if that feels better.

Your journey is powerful. Your voice brings hope.
Let’s keep building this beautiful together! 🌈

Tag or share this post with a tubie family who deserves to be celebrated 💫

💚 Brian’s Story: The Beginning — Hope Before Answers (Part 1) 💚
From before birth, Brian’s life was filled with medical questions and miraculous strength. His parents chose hope when doctors gave heavy news, and each moment since has been guided by courage.

Stay tuned for Part 2, where we’ll share how the NG tube and G-tube helped Brian begin to thrive.

🫶👶 World Prematurity Day 👶🫶

Every small life is powerful — about 1 in 10 babies is born too soon worldwide. Prematurity is the top cause of death under five, but many challenges can be reduced with better newborn care, follow-up, and family support. Today we honour tiny fighters, their families, and the health teams who stand with them. Share your story, lift a family, or learn one practical way to help — every voice helps close the care gap.

You are not alone. — Psalm 139:14

Photos of Logan by .of.an.ivf.family