Miriam Avery, Complementary Therapist FdSc MFHT

New treatment room, Hailsham. Absolutely loving my cosy new pod and definitely not missing the morning commute. Can’t wait to see you all here for your musculoskeletal complaints ☺️

Fully booked for 2024 🎄🎄

My daughters, Jess and Tilly have been nominated by their Scout leader for their work as Volunteer Young Leaders with 2nd Hailsham Beavers and Cubs. If you have a moment they’d love a vote xx shttps://eastsussex.news/hailsham-hero-shortlisted-nominees-announced/?fbclid=IwZXh0bgNhZW0CMTEAAR2dnvg_xXb8Arf1oLQCfw83tBkuAvmaHtGISA3hGmml1RH8LE7BvhO6ig8_aem_URyHhIDQ5n70ioy6w-lO0w

Hailsham Hero Shortlisted Nominees Announced - East Sussex News | Free Community Newspapers FOLLOWING hundreds of nominations from the people of Hailsham, the shortlisted nominees in the forthcoming Hailsham Hero Awards have been announced. Online voting is now open to find the winner of each category which will be chosen by the readers of Hailsham News and listeners of Hailsham FM. The aw...

Validating 'The Spider' research tool - Researchers need your help!

A team of specialist clinicians and researchers has developed a new patient questionnaire called ‘The Spider.’ The Spider has been designed to help identify the impact these symptoms have on a person’s daily life, guide treatment pathways and monitor the impact of treatment for people with hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS).

The research team has ‘validated’ The Spider through several previous surveys and studies. Now they know that The Spider measures people's symptoms as they had hoped. Thank you to everyone who has taken part in the surveys so far in this research series — researchers could not make progress without your support!

The research team is now making sure that The Spider can measure how symptoms change over time. They are looking for 300 participants who have a diagnosis of HSD or hEDS to take part. Participants must be between the ages of 13 and 65 and must not have the following conditions:

- Neurological conditions unrelated to HSD/hEDS such as stroke, multiple sclerosis, cerebral palsy and acquired or traumatic brain injury. Please note, people with co-existing neurodivergence (Autism Spectrum Disorder/Attention Deficit Hyperactivty Disorder/Developmental Coordination Disorder) are NOT excluded and are encouraged to participate.
- Rheumatological/inflammatory conditions unrelated to HSD/hEDS such as rheumatoid arthritis, ankylosing spondylitis, psoriatic arthritis.
- Unrelated joint/muscle problems: post-surgery, traumatic injury. Please note people with co-existing POTS or orthostatic intolerances and age-related osteoarthritis are NOT excluded.

The researchers will ask you and/or your child to share your experiences with many symptoms including pain, fatigue, digestion, bladder and bowels, dizziness and fainting, and your mental health. They will ask you to take this survey three times in total, the second survey a week after the first, and the final survey three months later.

They will ask you to share your email address so we can send you reminders to complete each survey and would be grateful if you could complete all three surveys.

Here are the links to the questionnaires for you to complete. Once you open the link you will find further information about the study and will be required to consent to participating before you can access the survey. 18-year-olds can choose either the adolescent survey or the adult survey.

Aged 13 to 18 (adolescent survey) https://redcap.idhs.ucl.ac.uk/surveys/?s=X4NC37WXTN89W8TH

Aged 18 to 65 (adult survey)
https://redcap.idhs.ucl.ac.uk/surveys/?s=WCWCJM3F8XEWF7MR

Planning for the new BSc Complementary Healthcare underway. Watch this space for details, or enquire now!

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🎓 Did you know that East Sussex College University Courses are in partnership with the University of East Anglia? Consistently ranked in the world's top 200 universities and top 25 in the UK, the UEA has validated a range of courses including:

BA (Hons) Music Production & Creative Recording
BA (Hons) Design (Top-up)
BSc (Hons) Counselling (Top-up)
FdSc Counselling

Learn more about our degree courses today! Email [email protected] 👏

Please sign ♥️

Sign our petitions!

Call upon the governments in England, Wales, Northern Ireland, and Scotland for suitable NHS services for people with Ehlers-Danlos syndromes and hypermobility spectrum disorders.

Click below to sign the petition for:

- England https://petition.parliament.uk/petitions/637313
At 100,000 signatures, this petition will be considered for debate in Parliament.

- Wales https://petitions.senedd.wales/petitions/245435
Petitions with more than 10,000 signatures will be considered for a debate in the Senedd.

- Northern Ireland https://www.change.org/p/provide-suitable-nhs-services-for-diagnosis-management-of-eds-and-hsd-in-northern-ireland

- Scotland - Coming soon!