FND HBH
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A safe, supportive community for people living with functional neurological disorders ( FND )
Anyone else need a full committee meeting before their body agrees to wake up? 😂
Every morning feels like a roll call…
🧠 Brain: “Present… but give me 20 minutes.”
👀 Eyes: “We’re open, but we’re not focusing.”
🦵 Legs: “Absolutely not.”
💪 Arms: “Maybe after a coffee.”
🚶 Body: “Let’s just lie here and think about going to the toilet.”
Honestly, some mornings it can take me up to an hour just to get all the body parts communicating with each other and functioning enough to attempt the basics! 🤣
Please tell me I’m not the only one? Does anyone else with a chronic illness, FND, fibromyalgia, or other conditions feel like their body wakes up one part at a time?
Drop a comment and let me know your morning routine (or struggle!) 👇❤️
01/06/2026
🧡✨ WHAT’S ON THIS MONTH AT FND-HBH ✨🧡
We have a fantastic month ahead filled with opportunities to connect, socialise, laugh, learn, and support one another.
Whether you’ve recently been diagnosed, have been living with FND for years, are a carer, or simply want to connect with people who understand, there is something for everyone.
📅 6th June – FND-HBH Quiz Night
🕗 8:00pm - 9:30pm
💻 Google Meets
📅 9th June – Virtual Support Group
🕚 11:00am - 1:00pm
💻 Google Meets
📅 20th June – TikTok Karaoke
🕘 9:00pm until late
🎤 TikTok Live
📅 28th June – Funny Symptom Bingo
🕗 8:00pm - 9:30pm
🎱 First ball drawn at 8:15pm
📱 TikTok Live
📅 30th June – End of Month Wellbeing Meeting
🕚 11:00am - 1:00pm
💻 Google Meets
For all Google Meets events, the joining link will be posted in our WhatsApp group 15 minutes before the event begins.
At FND-HBH we believe nobody should face FND alone. Our community is built on our core values of:
🧡 Healing
🧡 Belonging
🧡 Hope
We can’t wait to see you throughout the month. Come along, make new friends, share experiences, have a laugh, and remember—you are never alone.
🌐 www.fndhbh.co.uk
31/05/2026
🧡 Thank You Everyone 🧡
A huge thank you to everyone who attended yesterday’s FND-HBH event.
Whether you joined to share your experiences, listen, learn, support others or simply spend time with people who understand, your presence helped make the event special.
One of the things we are most proud of at FND-HBH is seeing people come together, build friendships, support one another and realise that they are not facing this journey alone. Every conversation, every smile and every shared experience helps strengthen our community.
We hope you found the event welcoming, supportive and enjoyable, and that you left knowing there is a whole community standing beside you.
We would also like to thank everyone who continues to support FND-HBH behind the scenes. From attending events and sharing posts to offering encouragement to fellow members, you all play a part in making this community what it is.
👀 Keep your eyes peeled over the coming weeks!
We have plenty of virtual events planned throughout the month, including wellbeing sessions, social activities, games, support meetings and opportunities to connect with others who truly understand life with FND and chronic illness.
We’ll be announcing dates and details very soon, so keep an eye on the community chats and social media pages.
Thank you once again for being part of FND-HBH.
Healing • Belonging • Hope 🧡
You are valid.
You are strong.
You are enough.
31/05/2026
Important Announcement
Due to ill health, we have made the decision to postpone the upcoming FND-HBH Fundraising Battle until further notice.
As many of you know, living with chronic illness and FND can be incredibly unpredictable, and sometimes health needs to take priority. The wellbeing of everyone involved is far more important than any event, and we fully support the decision to take the time needed to focus on recovery.
We would like to thank everyone who has supported the event, shared the posters, and planned to join us. Your kindness, understanding, and continued support mean so much to us.
This is not goodbye to the event—just a pause. We hope to bring the Fundraising Battle back in the future when the time is right and everyone is feeling well enough to enjoy it.
In the meantime, please join us in sending love, support, and understanding to those affected. Health always comes first.
Thank you for your patience and for continuing to support the FND-HBH community and our mission of Healing, Belonging, and Hope.
Much love,
Jordan, Skye & The FND-HBH Team 🧡
Healing • Belonging • Hope
30/05/2026
🔥 FND-HBH FUNDRAISING BATTLE IS ON! 🔥
It’s time for an epic showdown as (Skye) takes on in a fun-filled fundraising battle to raise awareness and support for those living with Functional Neurological Disorder (FND)!
🏆 One Night. Two Creators. One Cause.
💜 You decide the winner!
📅 31st May
⏰ 6:00pm – 7:30pm
📍 LIVE on TikTok
Get ready for:
🦖 Character Battle: Spider-Man vs Dinosaur
💦 Don’t Laugh Challenge (with water!)
🌶️ Hot Sauce Challenge
🧁 Attack of the Cream!
❓ The Flour Shower Quiz (hosted by Becky)
Every like, gift, share and donation helps us continue spreading awareness, providing support, and growing the FND-HBH community built on our core values of:
💜 Healing
💜 Belonging
💜 Hope
Bring your friends, pick your team, and join us for an evening of laughter, chaos, challenges, and community spirit — all while supporting an incredible cause.
Team or Team … who are you backing? 👀
30/05/2026
📢 TODAY’S THE DAY! 📢
We’re looking forward to welcoming everyone to our 2nd FND-HBH Meet Up this evening.
Whether you’re living with FND, supporting a loved one, caring for someone, or simply want to learn more, you’re warmly invited to join us for an evening of connection, understanding and support.
🧡 Saturday 30th May
🕕 6:00pm – 8:00pm
📍 FOCAL, New Hey Road, Huddersfield, HD3 4DB
At FND-HBH, we believe nobody should face FND alone. Our meet ups provide a safe, friendly and understanding space where you can share experiences, listen to others, ask questions, make connections and enjoy a cuppa with people who truly understand.
There is no pressure to speak, no expectations and no judgement – just a welcoming community built around our core values of Healing, Belonging and Hope.
If you’ve been thinking about coming along, we’d love to see you there.
🧡 Real People. Real Support. Real Community.
🧡 Connect • Support • Belong
🧡 Together We Are Stronger
We hope to see you there!
For more information:
📧 [email protected]
Meet the incredible people behind FND-HBH Community.
Every day, our admin team volunteers their time, energy and lived experience to help create a safe, supportive and understanding space for people living with FND, chronic illness, disability and their loved ones.
From welcoming new members and offering peer support, to organising events, sharing resources and being there during difficult moments, each member of our team plays an important role in helping our community grow.
We may all have different stories, different strengths and different roles, but we share one common goal:
Healing • Belonging • Hope
This video is a chance to meet the faces behind the messages, the encouragement, the support and the community you see every day.
Thank you to every member of our admin team for the compassion, dedication and kindness you bring to FND-HBH. We couldn’t do this without you.
Please join us in showing them some love in the comments.
We are so excited to announce our SECOND in-person FND HBH Meet Up!
After the love, support and connection from our first gathering, we cannot wait to bring everyone together again for another evening of understanding, friendship and community.
Living with FND can feel incredibly isolating at times, but please remember — you are not alone. Whether you live with FND yourself, care for somebody who does, are a family member, friend, or simply want to learn more, you are welcome with us.
This is a safe, supportive space to:
• Meet others who truly understand
• Share experiences without judgement
• Make friendships and connections
• Have a brew, a chat and feel heard
• Support one another through the highs and lows
No pressure. No expectations. Just real people, real support and real community.
Date: Saturday 30th May
Time: 6PM – 8PM
Location: Focal, New Hey Road, Huddersfield, HD3 4DB
At FND HBH we believe in healing, belonging and hope — and together we really are stronger.
We would absolutely love to see both familiar faces and new ones there.
For more information please contact:
[email protected]
Our wellbeing meeting is currently live come join and decompress and have peer to peer support
meet.google.com/gtc-aypj-gzz
Or dial: (GB) +44 20 3937 2665
PIN: 917 704 054 #
More numbers: t.meet/gtc-aypj-gzz
21/05/2026
Tonight is all about wellbeing, connection and reminding each other that none of us are alone 🧡
Join us tonight at 8PM for our FND HBH Wellbeing & Welcome Google Meet
A relaxed and supportive space to chat, connect, listen, laugh and simply be around people who understand
Whether you’re brand new to the community or have been with us from the start, everyone is welcome
The Google Meet link will be posted tonight in the WhatsApp Social Lounge
Take some time for you tonightYou matter
www.fndhbh.co.uk
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