Angelina’s Army

The pulmonologist appointment went well ,very nice doctor. She ordered a chest compression vest treatment for home. She was actually surprised by looking at her chart that she actually didn’t already have one and that she made it this long without it.😱🥺
 so praise God Angelina has been pretty decent as far as I’m doing the percussion treatments on her, but this is the chest one that she really responded to well in the hospital.
We will have to do this each day she said for three months. She gave me instructions and if she got sick and how often I would have to do it and so forth.
Shes still on oxygen at night until she has that sleep test done at the end of October.

I always keep it real. This is why I like to share Angelina‘s journey because epilepsy ultimately has lead us to this point.
We all do agree that aqua therapy was what jumpstarted of the aspiration pneumonia . She has to stop aquatherapy ,which she enjoyed so much.
However, for someone like Angelina with all the medical complexities , it’s gonna take her longer to get over the pneumonia part of it, especially because she’s not strong enough to cough up what is in there and that’s not including possibly micro aspirations as well.

But I will say that God is still good. I still trust Him. I may not understand things. And I may never will, but I know that we only have little pieces of the puzzle of life and He has the big picture ,the completed picture. One day it’ll make sense. maybe not here on earth but once I meet God, I’ll understand the why.

So we will do the best that we can to take care of Angelina and give her the best life and quality of life that we can as always

💜Much love To you all 💜

Here to see the pulmonologist.
Another specialist added to her list of care team.
She’s already repeated, “no”
But I’m trying to reassure her we are just visiting and not staying
Anxiety is real 😞

If each of you could just take a few minutes of your time to send this sweet boy a card while he’s in the PICU on his third birthday.
It’s free, just follow the link
Thanks all❤️

Send an eCard | Akron Children's With two hospitals, 44 pediatrician offices, 50 primary and specialty locations and over 1,000 providers, we offer convenient access to expert pediatric care throughout Ohio.

Here for her swallow test
She is very anxious , keeps grabbing my hand and saying my mommy. I think she thinks she’s staying 💔

Praying she does well, she’s not the best at eating or drinking on demand 😞

Today we were able to celebrate Angelina ❤️
I am so thankful to God for so many reasons!
Yesterday looked a lot different than today, heck the last almost 2 weeks have been so tough.
But today we were able to celebrate Angelina and let her have an absolute full day of just pure happiness,
And she got it. ❤️

As always, thank you Heroes and Tiaras Character Entertainment for bringing pure happiness and joy to our little girl.
I’m not sure that we’ll ever be able to get back down to Florida, so we wanted to bring Florida here. And you made it happen. It was ever so magical and gave Angelina the experience that was so personal and even better than we could’ve ever imagined.

So thankful to everyone that was able to be there

And thank you to everyone who has prayed and have been so concerned and caring for Angelina.
I’m truly so thankful to God that she was able to be celebrated so big today ❤️