Cystic Fibrosis PenPal Club & Support group

Have you ever been to the ssi office in Minneapolis mn the one on Chicago ave south .. I would like to take a survey on how people think they get treated there by the security team that is watching the front door Yesterday I went there and it was the worst they need to learn there Job and show respect to people I saw them make a lady whom just moved to MN cry because how they treated her and her young son she told me what happen and I thought that was the most saddest thing ever they do not know any matters they act like they are ssi staff and they are not they yell at people whn they do not understand what is going on and now your forced to go down there if you need a new ssi card I found away to get a card but it was online but a online fee of $40 but I got mine for free the lines are very long please I want to hear your thoughts on how you have been treated at these ssi offices in MN and other states throughout America thanks for your time David cfkid wagner

breaking news I will share more info when I have all of it ready to go nice work team

Att everyone please note that my address is now the following
[email protected]

Dear law makers of mn,

Today I would like to take a moment and speak with you about some very urgent issues that are happening ... The state of mn medical program offerers a ride to the medical meeting s with Drs and that is wonderful however here is were the problem comes in... Currently all people that use the ride program must know 2 to 3 days ahead in order to get to the Dr meetings now we all know as humans we sometimes get sick and we do not know that far in advance . We also have at times have Dr s or nurses that will call these same patients and ask them to come in that same day or the next day and when you call the ride program they will tell you no well in my eyes and many other s that I have spoken with agree if a Dr is asking for you to come to see them for testing or what ever there is a good reason why they want to see you right away and calling 911 for this is not a good option because these are not emergency rides they are urgent rides instead the other sad deal is that metro mobility also does this same thing and so are people using these services can not go anywhere unless they have 2 days planned ahead of time in order to get care now before covid 19 the metro mobility did have same day rides and they also had next day rides now those are gone we need to correct this issue right away like I have stated above that everyone needs medical meetings with Drs and nurses and sometimes even a ride to the pharmacy if we need to get a law that say s that all those on these programs must be able to get a ride during the same day or at least the next day but waiting two days makes it very hard on everyone ... Metro mobility is also used to take people other places then just Dr meetings and no one wants to be stuck in the home because they can not find a ride I know that mn can do better then what they are doing now maybe we need to get another vendor to help but leaving a person behind makes things very hard for everyone. I know that people have been left behind from both of these programs now let me explain if you take a ride to the store and you do your shopping you get 3 hrs and then they come back and get you however there has been times when they never show up now if we do that we get counted as a no call no show and if you get too many of them they will kick you off the programs I say that it needs to be a rule that say s if they don't show up then they get in trouble just like we do instead of them doing nothing my one client got stuck for hrs at a place many miles away from his home and so he had to call someone from another city and tell them to come and get them that time the provider did not pick the client up or get in trouble for this issue .. There is also not many cabs in the state of mn that are for people in wheelchairs and other devices they used to have many more but now they have went away even if a company of a taxi service had them on a on call so that if a person needed them they would have at least a chance to get home all I am saying is not everyone has someone that they can call to get that help and if they do it could be a very long wait for them changes in the ride programs need to change insurance pays for the medical rides but why does it have to be this bad can some law maker please come out with some new laws that will fix these issues and if any of them would like to speak with me about this I would speak out with many other s you can reach me anytime 763 280 2137 thanks so much for your understanding and support. your mn resident David cfkid Wagner

I pray that something is coming very soon this being homeless and people lie and say oh are company will help you fond out the home and company was nothing but a scam
DID YOU KNOW THAT IF YOU HAVE CYSTIC FIBROSIS NO SHELPTER IN MANY STATES WILL LET US STAY MR PRESIDENT PLEASE HAVE A WAY THAT NEW HOMES ARE BULT FOR THISE THAT HAVE MASSIVE MEDDICAL ISSUES ITS BETTER THAT WAY THEN TO HAVE BUILDING S THAT ARE NEAR EMEPTY THERE IS NO REASON EVERYONE IM AMERICA CAN HAVE A HOME ITS NOT A WANT ITS A NESSISTY NOW IF ANY LAW MAKER WANTS TO SIT FOR A.REAL COVERSATION EVEN THE CURRENT MAYOR OF MINNEAPOLIS STATED HE WOULD FIX THIS ISSUE PLEASE PRAY FOR ALL HOMELESS IN THE WORKD IM HERE 763 280 2137 GOD BLESS DAVID CFKID WAGNER

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Good afternoon everybody from the cystic fibrosis Pen pal club support group I hope you all are having a great day today I just wanted to give you guys an update I am working on a name change some of you may know this and some of you may not my old name is David Lynn Wagner my new name will be David CFkid Wagner and the reason is is because cystic fibrosis is always put on the back burner and we need to get the word out so that we can find a cure so that we can find assistance for our patients as well and we need to get the understanding that people that CF are very important and that there is probably more than we know that is out there for patients people have not been diagnosed cuz that need to be and we need to get them diagnosed so that they can get the help that they need as well I've had only a few people that have told me that they have had covid 19 during the covid 19 outbreak for Cystic Fibrosis which is great I have heard that most of you stayed in the house as soon as it was told to do so and only went out only when needed and had Masks on at all times wonderful news and I'm glad that only a few of you did get covid 19 but not your fault it wasn't no one's fault to get covid 19 arrived at people without their knowledge even so it was a hard disease to conquer and we lost a lot of lives in America lives due to that covid 19 and we are still not out of the woods yet because each time we find a new stran it starts all over again and we want people to understand that so please be careful the second subject I'm going to talk about today is this school is about to start and we are going to have open school it sounds like meaning all the schools will be open this upcoming year and if not homeschool will be available like we had before but the school when you open it many of you might have problems getting an IEP started my suggestion to you is to start that IEP now or get help doing so I myself have done these many times and I'm willing to help your family do so as well we have a 24-hour CF hotline 763-28-02137 so please make sure that you use that number anytime you need help we would like to help you if you need help with anything we don't even have to talk about CF if you just need to talk if you just need a friend I am here I need friends too so we need to make sure that each of us stick together because winning the war on CF is going to be a war that we fight together no one can win this war individually my third thing I want to speak to you about is still on my mind we want to get a funding program started for Cystic Fibrosis patients meaning if you need help with medication funding if you need help with rent food utilities Etc we want to be able to help you we want to find resources to do so so in order to do that we need your help to get that done if you're call our 24-hour hotline or leave a message here as well we need to get a food shelf going too because many of the food shells that are currently open do not have food for Cystic Fibrosis patients now what we would do with that is we would have a food voucher program or food gift card program and that means that the person that lives in your area will send you a gift card and that volunteer will then write it down on a list each state will have a certain amount of gift cards we are working on this to try to find some people to help us on this program if you know of anybody that is willing to help us get this going that would be wonderful let's make sure that all of us are supporting one another in this massive war against the six fibrosis I have to also announce our CF friend and Ukraine is doing wonderful he has had zero issues with the destruction there and we are very thankful for that as well remember that I am always here as your friend your brother and you all mean the world to me so I apologize that I haven't reached out very much lately and that is because I've been extremely busy on David's law and other things as well so when I get the new name change I will let you all know it will be a symbolic day and it will be very exciting I want you all to know that God loves you very much and so do I you take care of yourself and make sure that if you need someone to talk to I am here always may God be with you have the greatest day and wonderful summer as well your brother always David Wagner. Please note this has been dictated into the system and there may be no,. Or! The reason is due to dictation thank you so much I hope you all understand have a great day

Good afternoon. I wanted to ask you all a question? If any of you are currently living in the city of Ackley Iowa? At one time my brothers and sisters we're the only ones in this town with cystic fibrosis that is why we had to come to the big city of Minneapolis get care as a young kids. I was told buy a friend that there is possibly two young boys that have CF that in Ackley right now if anyone can comment that would be great thank you your brother always David

Good morning everyone I wanted to give you a update on David s law petition that is sent directly to law makers every time a new person signs in support of David’s law currently we are at 18,259 congratulations 🎈 everyone and thanks for your support .

We are seeking a cartoonist artist to help us with a new design for are new t shirts hopefully coming out to have in time for the holidays 2018 if y would like to help us please call me at 612-282-1211 24 hr cf hotline are hope is to draw attention to the shirts and then maybe law makers will start calling us again and maybe even a news media reporter even if it’s only a news paper or a magazine that would be great as well all ideas are welcomed please also note we did get a phone call from another school district superintendent and hopefully when they vote soon that will mean they will use David’s law right after the holidays are over and the 2nd semester starts and that will make many schools very happy including students and families fighting CF and have a less chance of missing more lunch time plus missing class time and this would also mean that a parent would no longer be required to go on all field trip s because they have to give enzymes so thanks again for your support I think all of you as my brothers and my sisters and soon CF will stand for cure found and not cystic fibrosis any longer congratulations to the schools that are currently using David’s law with no issues this year so far plus last year as well great work everyone.

David W
612-282-1211
[email protected]
https://www.petition2congress.com/ctas/davids-law #

David's Law

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ladies and gentlemen brothers and sisters I am very happy to announce that the cystic fibrosis pen pal Club in support group has now found someone to be our artist for David's law T-shirts they are going to be great it's a digital drawing that is going to be on the front of the T-shirt we're working very fiercely to get them done and we do not have a date on when they will be done but they will be done maybe by the end of November possibly longer I want to let you all know that this is a very gifted artist so he is going to be taking his time and I thank you all for all that you guys have done for David's law in the meantime so don't forget we still are looking for volunteers to help us out with getting letters to lawmakers throughout the United States and again we will have T-shirts available as soon as the artist is completed please also know if you are interested in having your name put on the back of that t-shirt you need to contact me at fight fightCf@ yahoo.com with the title t-shirt info with your first and last name and we will place it on the back of the T-shirt when they are done and then they will be up for sale we do not know what the prices will be at this time we will keep everybody informed as updates come in if you have any further questions or you need to speak with me right away please call the cystic fibrosis 24-hour hotline at 612-282-1211 and again we thank you all for your support David's lawn now has a little over 19,000 supporters throughout America and growing each and every day thank you so much again and soon David law will become a federal law throughout the United States thank you

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