Prayers For Luka

Sorry, I haven't been on to update anybody. I have been locked out of Facebook via my phone for months. As with having toddlers, I am finding very little time to get on the computer to come say Hi and check in.

Well, today is February 1st, so it is CHD Awareness month, and this is a month we celebrate that Luka is still here. Since we didn't even think He would make it through day 1. Here he is rocking it at 3 years and 4 months. So please spread the awareness and wear something red all month, and spread the love. If people ask what it is and why it is important to you. Share your story and be proud of it. If you're not a CHD Warrior, that's ok, share Lukas story and let them know there are others just like him.

Some people like wrapping up Thanksgiving week. With the start of Christmas. By doing all the Black Friday and Cyber Monday shopping for Christmas gifts. Some like to take the weekend to relax and get ready to put up Christmas decorations. Of course, if you know Luka, he has a totally different idea of fun in mind. Saturday, we had a day full of loose bodily fluids. To the point of going to the ER before we get to the dehydration stage. Which got us admitted, and when we thought it would only be a few days, Luka, of course, had other thoughts. See the doctor, we will be here till at least Saturday, possibly longer. Then once we are home, we don't know when he will be allowed to return to school. Since this Gi bug has taken a hard his on his full system, including his sugar levels. So our hope is to get back on home feeds by Friday and have normal body functions and levels. That way, we can go home this weekend and see what the timeline for staying home might be. So please send your prayers and love for this little fighter, as we have had some rough days so far, and we are hoping for them to get better.

Update: Luka is home and doing well. The Dr said he can even go back to school tomorrow.

Do you know that we celebrate World Down Syndrome Day on March 21?

It is because the date 3/21 connects to Trisomy 21, the genetic condition in which a person has three copies of the 21st chromosome (ie., Down Syndrome!). PLUS chromosomes are shaped like little socks! So, we celebrate 3/21 by wearing super fun and colorful mismatched socks!

Help us celebrate WDSD and ROCK YOUR SOCKS!

Your purchase of Pals Socks helps the Down Syndrome Diagnosis Network (DSDN) support and connect families online through the DSDN App at no cost to users, fuels our Rockin' Family Fund, and helps us provide resources such as:

Pregnancy Gifts
Welcome Gifts
Memorials
Care Gift Cards
Scholarships
Adoption Grants
Opportunities for parents to connect, be inspired, and recharge at our annual Rockin' Mom™ and Dad™ retreats
Talk with medical providers about the diagnosis conversation across the US at national and regional conferences
Work with OB/GYN residents and medical providers on how to deliver an unexpected diagnosis
Your support helps DSDN reach thousands of new families joining the DS community each year and connect rockin' families to local organizations.

Please share this fundraiser with friends and family. Every order helps!

https://palssocks.rallyup.com/c/2025dsdn321volunteers

Help us get socks to spread Awareness to Terry and David's classes for Down Syndrome. Our Goal is 100 socks for the classes.

Cash app: $JRGarst2020
Venmo/PayPal:

We are home and settled in. Now to just fight with the state to get back on Medicaid. That way we get our nursing back.

Luka update:

He is moving to a general floor with the goal to go home on Saturday. He is on home settings during the day for everything. At night right now we had to change his CPAP setting to help him to go lower on his oxygen. So that way he can get to his new home settings before discharge. Also we have no updates on his heart but with him being here tomorrow. They will be doing the test here they were going to do in Dallas for his visit. That way his Dr can still look at the test and get back with us on how his heart is.

So big prayers for his heart and getting home Saturday. Thank you all who have been praying for him.

Update 6:30pm:

We are doing great slowing starting feed and going down on fluid. Also lower on our high flow with it at 8liters and 40%. Thank you for all the prayers and keep them coming.

Update 9pm:

We are in PICU with Rhino virus and pneumonia. While on 12 liters of high flow oxygen at 100%. So it's looking like it's going to be a nice long stay for us. They have started twice a day antibiotics but bcuz he is getting so much oxygen pressure. They have him NPO (not eating) bcuz it makes it hard on his stomach. So prayers we get better and start lowering our oxygen with in the next 24hrs enough they will let him eat again.

7am this morning

How we have decided to start off the new year...

2nd hospital admission, first ambo ride of the year, and put on 8 liters of oxygen on high flow right as we get in the room. Just so everyone can be kept on their toes. Now just to wait for the IV team and X-ray to come do all their fun stuff. So we can get moved to a room. Once they decide if he is going to a general floor or the PICU floor.

I am looking for people from different companies who would like to donate or fundraise for Down Syndrome Diagnosis Network. All the funds sent to them. Will help with research for Downs kiddos and how we can better their lives for them. A long with the funds that get sent to them. Will help Alex and I be able to go to the moms and dads retreats this coming year. So that we may learn more and connect with other parents going through the same stuff as us. So if your able to help in anyway please reach out to me. I have the DSDN EIN number and they have there 501(c)3 to help you out.

Luka last night was amboed to Plano and today is being transferred to Dallas for his Heart. So please keep him in your prayers as the medical teams do their best to fix the problem.

Big shout out to my newest top fans! 💎 Deanne Broumley

Drop a comment to welcome them to our community,

Home with my boys!!