Lippylashlove VIP’s

My first pumpkin spice coffee of the new “season.” I know it’s not yet but I’m always ready for it to start once we hit September. Can’t wait for cooler weather! 🍁

I haven’t been a fan of summer in many years. Probably since I was diagnosed with and the sun became the enemy. But then, a pool of my very own in my own backyard with a big umbrella for a nice shady spot for me to float deliciously in the cool water. I think I might actually be sad when summer is over this year. Thanks to my husband for all the extra hard work you’ve put in this summer just to make me more comfortable. It’s been great for extra PT to help with my strength and movement. I’m stronger than I’ve felt in months for sure.

2 of my watercolor painted cards. These are actual paintings not prints. Blank inside, 5x7 size, and they come with a matching envelope inside a clear plastic sleeve. $8 each plus shipping. Please let me know if you’re interested. Also please inquire about my custom paintings. I can do 9x12.

Wore my first ever bikini today. Well, since I was a little kid anyways. It was just in my backyard pool but it sure felt nice. I tried to avert my gaze from all the scarring on my body. From multiple picc lines, insulin pump insertion site locations, rash scars, CGM site scars, surgery scars. I had a nice, relaxing float time with my hubby and I’m so lucky he put our pool mostly in the shade which is where I laid. isn’t a very friendly disease in the sun.

Quiet weekend so far. Not feeling too great again but it’s been so nice being home after a 6 day hospital stay yet again. I am home with a lot of complications and a few new medical devices attached to me. I am enjoying my own bed, my own foods and, of course, my guys! Our tree is up but we aren’t quite ready for Christmas yet. Anyone else? Tonight I sat down with jason and Braidon to have hot chocolate and watch Once Upon A Time in Hollywood. It was nice spending time together. And now, I’m ready for bed at 9 pm on a Saturday night. I’m old.

I love, love, love new makeup. (I think I have a problem). Just received the new Jawbreaker collection. Part of what I ordered came today. Hopefully the rest gets here soon. This palette is going to be the best summer palette! I am so excited. Makeup makes me so happy. Wish I could do it every day but my bad health and low energy gets in the way. @ West Jordan, Utah

Today is a liquid calories type of day. I feel worse today then when I was in the hospital. My IV antibiotics that treat my kidney infection increase my cdiff symptoms and make for a very sick me. But I also actually have cdiff so who knows if I’m getting worse or it’s the antibiotics or what. I’m just beat down and not wanting to return to the hospital so I’m doing all I can from home to prevent that. Lots of rest, lots of meds, fluids, and trying to keep spirits high. I’ve been chatting with some friends who seem down right now. That always helps me. If I don’t say it enough, I am eternally grateful for all of my friends and family who love me and support me. Xoxo

I challenge all of you to do this!
1️⃣ The sound of a thunderstorm
2️⃣ Puppy snuggles
3️⃣ My family
4️⃣ Days with no puking
5️⃣ Funny Movies
6️⃣ Supportive friends
7️⃣ Makeup 💄
8️⃣ Dates with my hubby
9️⃣ When my mom visits
🔟 Good naps

Invited my father in law out to dinner. 30 minutes before we were supposed to leave I had 2 seizures and passed out. After a seizure I am dead to the world. It’s like if I were plugged in to stay awake and alert and someone unplugged me. It’s immediate and it’s awful. And because I’m a mess after a seizure I couldn’t be left alone. Hubby ended up going out to dinner with my FIL alone while my kiddo stayed home to watch me. I hate that it happened and although I know I don’t have any control over my seizures, I still feel so bad when they happen. They had a good dinner and I apologized to my FIL who told me not to ever be sorry when I’m sick. He’s a good man. Now I’m dealing with the aftermath exhaustion and pain. Just living the dream over here lol. I hope everyone else is having a better day than me. .5

Feeling horrible and sh*tty for a couple of weeks now but especially horrible the last 24 hours. My blood pressure is scary low so we are running IV fluids at home which is all the ER would probably do. I have zero energy, nausea, possibly another CDiff infection, ringing in my ears and feel like I have another kidney infection. I have another appt on the books already but not soon enough. Everyone cross your fingers I don’t get any worse.